Read all mail from Social Security Administration (SSA) program. 

  • * Or get help reading the mail. 

  • * If mail includes form to fill out, make sure to fill it out and send to SSA. 

  • * If mail confirms appointment for youth to see a doctor or other healthcare provider, the youth must keep the appointment or request a new date. 

  • * SSI can be terminated if beneficiary does not return forms or show up for appointments, unless good cause is shown. 


Make sure SSA knows about all medical conditions and treatment. 

  • * This information should go on forms completed or should be shared during in-person meetings. 

  • * Tell SSA about new medical conditions being treated, such as new mental health treatment. 

  • * Tell SSA about all medications and any side effects from the medication. 

  • * Tell SSA if youth is seeing a new doctor or therapist. 


Tell SSA about special education services and other special services the youth receives or has received through the public school. 

  • * This includes extra services in the classroom and any extra time on tests. 

  • * This includes services outside of the classroom, including class work assistance, speech services, physical therapy, or occupational therapy. 

  • * This includes any special vocational services. 

  • * This includes any summer special education program. 

  • * Sharing the most recent Individualized Education Plan (IEP) or Section 504 Plan will help make sure SSA knows about these services. 


Make sure SSA knows about vocational programs, trial work experiences, and paid employment. 

  • * This includes sharing any documents that say the youth needs extra services to make him or her ready for regular employment. 

  • * This includes information about any job coach services that are provided or have been provided. 

  • * This includes any challenges faced by the youth during the trial work or paid employment. 

  • * Sharing the State VR Agency’s Individualized Plan of Employment (IPE) will make sure SSA knows of about the agency’s services. 


Carefully read SSI notice, if SSI to be terminated; steps for appealing. 

  • * Notice will explain when last SSI payment will be received. 

  • * Notice will explain how to appeal and time limit for appealing (60 days from receipt of notice). 

  • * Notice will explain how to request that SSI continue during the appeal and time limit for this request (10 days from receipt of notice). 

  • * If appealing by mail, always best to go to Post Office and pay extra money to send by Certified Mail, signed receipt requested (keeping receipts to show when mailed or received by SSA). 

  • * Always assume it will take mail 5 days to reach SSA. 

  • * If in doubt, take notice to a local SSA office and explain you are there to file an appeal. 


Look for free legal or advocacy services to help with appeal.  

  • * Contact the Legal Services or Legal Aid office where you live and see if they will help with an SSI appeal. 

  • * Contact the Protection and Advocacy/Disability Rights organization where you live and see if they will handle an SSI appeal. 

  • * Contact your State or local bar association to see if any private attorneys will handle an SSI appeal, with a fee to be paid out of any back benefits only if they win.